health records
Coverage of health records in the Nexus archive.
- What is the UK Biobank project and what are the privacy concerns around it?
The UK Biobank project has facilitated medical breakthroughs using data from half a million volunteers, but recent revelations about the sale of their confidential health records on a Chinese website have sparked privacy concerns.
- UK Biobank health data keeps ending up on GitHub
UK Biobank health data has repeatedly been exposed on GitHub, with 110 DMCA takedown notices filed against 197 repositories by 170 developers. The latest incident involves data being sold on Alibaba, raising governance and privacy concerns, as genetic/genomics and health records are among the compromised files.
- Private health records of half a million Britons offered for sale on Chinese website
The UK government confirmed that private health records of half a million British volunteers from the UK Biobank project were offered for sale on Alibaba, a Chinese website. The data was removed before any sales occurred, and the information was described as 'de-identified'.