We were told our son was a 'late bloomer' and 'fobbed off by GPs'... we now know he has an incurable disease and life expectancy of 30

Parents reveal their son was dismissed by GPs as a 'late bloomer' before being diagnosed with an incurable disease, leaving him with a life expectancy of just 30 years. The family now faces a devastating reality after years of misdiagnosis and delayed care.